• G. J. Teunissen
  • P. Lindhout
  • K. Schipper
  • T. A. Abma

An authoethnography explores the lived experiences of patients being in control and self-managing their chronic illness among their families and friends. Findings show that the current health discourse narrows down people to mere patients and gives rise to tensions. This article indicates that people with one or several chronic illnesses or disabilities are first of all full citizens with needs, values, and drives seeking a meaningful life. Fair possibilities ought to exist to satisfy their needs to belong, to care for and to matter to others since these constitute an essential aspect of being human.

Original languageEnglish
Pages (from-to)44-60
Number of pages16
JournalInternational Journal of Feminist Approaches to Bioethics
Issue number1
Publication statusPublished - Feb 2019

    Research areas

  • Authoethnography, Belongingness, Chronic illness, Meaningful life, Self-management

ID: 57243294